Salford is paying tribute to photographer James Dunn by dedicating a classroom at The Lowry to him.
James, who died in April 2018, suffered from… mais 541 palavras
Etiquetas » Rare Disease Day
Rare Disease Day: a new EU platform to support better diagnosis and treatment
This article is brought to you in association with the European Commission.
Today, marking Rare Disease Day, the European Commission is launching a new online knowledge-sharing platform to support better diagnosis and treatment for more than 30 million Europeans living with a rare disease. mais 796 palavras
Dark clouds and looking for the light- trying different treatments
This week it was rare disease day (28th Feb) which saw over 50 people with RRP share their operating room/surgery numbers which came to over 3800 procedures. mais 1.451 palavras
Be(A)ware
One question I am asked repeatedly is “Why do you share about your health/condition online?” and most recently, “Why do you share your diagnosis? mais 438 palavras
Life with a Disease - A Mother's Perspective
Ahhh I’m so happy my mother said yes when I asked her to write a post for Rare Disease Day! So here it is, the words below are my mother explaining what it was like to have a child with a rare disease! mais 540 palavras
Rare Disease Day
February 28th was rare disease day. I’ve struggled for a long time with coming out about being rare. I do not have solid diagnoses. I had a doctor recently tell me that there is clearly something going on with my immune system and its not good but it doesn’t neatly fit into one category or another. mais 292 palavras
